What’s New?
The July 2018 website update includes the following changes and additions. Thank you for visiting!
- ECD Awareness Week is September 10 – 15, 2018, find ideas on what you could do to spread the word about ECD!
- A new ECD treatment and care location was added to the network, find all centers listed here: ECD Care Centers.
- California – Emerging Care Center
Institution: Stanford University
Location: 269 Campus Drive, CCSR 1155
Stanford, CA 94305-5156
Contact: Beth A. Martin, MD
Telephone: (866)742-4811 or (650)498-6000
E-mail: Martinb@stanford.edu
- Find new resources and other community fundraisers on our Host Fundraisers page. Let us know if you are planning an ECDGA fundraiser this year or would like to submit a giving story!
- Press Releases are available to share with your local media and friends to help raise awareness and support for ECD families.
- Announcements include a nomination for our President, Kathy Brewer, to receive a Global Genes advocacy award.
- The 2018 Medical Symposium registration is open. Invite your physician to attend, collaborate, and learn more about your care. An announcement flyer is now available to print or email.
- The following language pages have been updated with new information on treatments, events, and more.