What’s New?

The July 2018 website update includes the following changes and additions.  Thank you for visiting!

  • ECD Awareness Week is September 10 – 15, 2018, find ideas on what you could do to spread the word about ECD!
  • A new ECD treatment and care location was added to the network, find all centers listed here: ECD Care Centers.
    • California – Emerging Care Center
      Institution: Stanford University
      Location: 269 Campus Drive, CCSR 1155
      Stanford, CA 94305-5156
      Contact: Beth A. Martin, MD
      Telephone: (866)742-4811 or (650)498-6000
      E-mail: Martinb@stanford.edu
  • Find new resources and other community fundraisers on our Host Fundraisers page.  Let us know if you are planning an ECDGA fundraiser this year or would like to submit a giving story!
  • Announcements include a nomination for our President, Kathy Brewer, to receive a Global Genes advocacy award.
  • The 2018 Medical Symposium registration is open. Invite your physician to attend, collaborate, and learn more about your care.  An announcement flyer is now available to print or email.
  • The following language pages have been updated with new information on treatments, events, and more.

Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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